As part of the first stage of the Neurodiversity Transformation Project, the Integrated Care Board (ICB) created a survey in order to further understand the current experiences and journey before and after assessment for parent carers, practitioners and professionals who are supporting children and young people with neurodivergent needs. This closed on 31st December 2023.

Thank you to all those who took part in our listening event. It was really a helpful event in which we heard from families at all different stages of their journey and received invaluable information which will be fed back in the Neurodiversity Transformation Project

Back in September, we conducted two surveys for our community: one on Attendance in Education and the other on Short Breaks and childcare services. The results have now been published on our website.

The BNSSG ICB is currently undertaking a Neurodiversity Transformation project that will inform a future model to support children and young people with Neurodiverse needs. Incorporating the views and experience of children and young people, parent carers, and system partners is vital to the success of this project.

The knock-on effects of Covid-19 on children and young people’s education are still a challenge that families and education settings are battling with today. One being the issue around attendance, and more specifically, children and young people with difficulty attending school due to mental health - also known as Emotionally Based School Avoidance (EBSA).

Have your say! Complete this survey to help shape services supporting children with additional needs and disabilities.

For the last three years we have been comparing data for children who receive SEN Support, which is those children who do not have an Education, Health and Care Plan (EHCP). This report compares those findings.

Last October we sent the parent carers of our community a survey to complete about how their child’s needs are being met in school.

Today, the CEOs of ICB and Sirona Health and Care informed us that the autism assessment criteria will revert back to the process that was in place, before the changes that were announced on 1st March 2023.

On March 16th, we wrote to the ICB to express your concerns and share your feedback. We are now waiting for an official response from the ICB. Families passionately believe that needs-based support should not come at the expense of a referral and potential diagnoses for those that seek it.

Parent Carer Forums in Bristol, North Somerset and South Gloucestershire (BNSSG) share the next steps in light of recently announced changes to Autism assessment and paediatric services.

The 3 Parent Carer Forums across Bristol, North Somerset and South Gloucestershire respond to the recently announced changes that narrow the referral criteria for children and young people to obtain an Autism diagnosis.